In addition to my first post about what Cystic Fibrosis was, I wanted to continue writing about how patients who have CF make the most of their lives, and in this post, I’ll be talking about what the treatments CF Patients undergo, as well as discuss what CF’ers (Patients who suffer from CF) do to build a sense of community and to connect with each other.
There are various ways Cystic Fibrosis can be treated. The first treatment most CF’ers use are learning how to trigger coughs that will help clear thick mucus from their airways, helping them breathe better. There are also different nutritional diets that CF’ers use to help them live a healthier lifestyle. Also, there are clinical trials for drugs that are being made to help CF’ers with the way that their genes function correctly, such as the drug Kalydeco. In addition, treatments such as inhaling Hyper-tonic Saline to help CF’ers breathe better and taking Pulmozyme to help loosen mucus from the airways are ways CF’ers can live longer. CF’ers also take Anti-Inflammatory Drugs, Anti-Infective Drugs, and sometimes undergo lung transplantation.
I can’t help but be amazed at how optimistic, empowered, and strong many CF’ers are about life. In a world where many people are unhappy with what they have in life, CF’ers make the most out of life. They truly seize the day and make the most out of it, never complaining about what they have. Their families are also extremely supportive of them.
A good friend of mine has blogs, websites, and Facebook Groups that you can check out if you want to learn a lot more about Cystic Fibrosis. Also, another friend of mine is blogging about her journey with CF, which I’d highly encourage you to check out as well. Here are the websites:
Our CF Matters Hawaii- A great blog about CF Developments as the occur! Made by my very good friend Rod! http://ourcfmattershawaii.com/
Gray Hair CF Club- A simple site for those who have CF and have gray hair, for CFers who plan to have gray hair, or anyone who knows someone with CF who has gray hair, or loves someone with CF who has gray hair. To grow old with CF is a victory! https://www.facebook.com/groups/453329351352360
Coughing Angel-My Friend Daniela’s Journey with CF. http://coughingangel.wordpress.com/category/english/
Special thanks goes out to Rod Spadinger for all of his help with helping my raise CF Awareness!
Thank you all for reading, and until next time, Live Life!